Bohring-Opitz Syndrome Awareness Day

Today, April 6, is Bohring-Opitz Syndrome Awareness Day.  Bohring-Opitz Syndrome is a rare genetic syndrome, with myopia being one of the common features of the syndrome.  You can read more here.

Two years ago, Chad and Taylor shared the story of their daughter Talynn who has Bohring-Opitz Syndrome.  They’ve sent an update and some photos of how Talynn is doing and in particular, her vision and how she’s been doing with her glasses. Many thanks, again to Chad and Taylor.  – Ann Z

@talynnsjourney

A couple years ago, Talynn Gurganus was featured on Little Four Eyes Blog. At that time she was a little over a year old. We had just gone through the unknown of not having a diagnosis but yet knowing something wasn’t right. She was in the hospital every month.
At 10 months old, Talynn was clinically diagnosed with Bohring-Opitz Syndrome (BOS). We researched symptoms and found that one was myopia. Talynn got her first pair of glasses. Since then, she has changed prescriptions 3 times! Each time her eye sight has improved! She is now 3 years old with a pair of Navy and Fuchsia glasses. She actually likes wearing them and hardly ever pulls them off. Talynn’s overall health has improved and we continue to push her to be the best she can be.
Follow her journey at Talynn’s Journey, or on Facebook, Twitter, and Instagram.
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