From reader, Danielle:
I wanted to give an update on Mia and her progress; and to maybe vent to other parents going through similar situations.
Mia just had her 2nd surgery on Tuesday for glaucoma. After her first surgery when she was 1 month old to have a cataract removed from her right eye, her IOP (intraocular pressure) was high. She was taking several different glaucoma medications to help decrease her pressure, however her IOP remained high. On Tuesday she went in for surgery to have an iridotomy (a small hole placed in the white part of her eye) and to also have a valve (similar to a shunt) placed in her eye to help control her pressure. Her surgery last over 3 hours and there were no complications (thank god). While she was in surgery she also had tissue that began growing over her artificial lens removed and her pupil was widened. We currently have to place 5 different drops and ointments in her eye 15 times a day. We had to create a chart to help us so we would know which drops /ointments we have placed in her eye throughout the day. She is already scheduled to have an exam under anesthesia in 6 weeks to ensure the valve has opened and is draining excess fluid. We have a long road ahead of us with many surgeries and exams under anesthesia to correct her vision.
Over the past 3 weeks she has not been able to patch or wear her glasses due to clouding from glaucoma and the re-growth of tissue over her lens, which was completely obstructing her vision. I feel like every time we think we are making progress, we are set back by some other eye condition. I also feel like we are unable to effectively improve her vision because we are unable to patch and have her wear her glasses. We have already lost 3 weeks and I am unsure when she will be able to begin with patching/glasses due to her recovery from surgery. I feel horrible that she has been through so much and she is not even 4 months old. I believe everything she has been through; all of the surgeries, poking, prodding, different medications, many trips to the ophthalmologist, will make her a very strong willed little girl. She is truly my hero.
Interesting fact – The legendary singer, Ray Charles went blind at age 7 from congenital glaucoma.