little four eyes

As a self-proclaimed expert patching parent, I have decided to assess the patches in our stash and share with you the ones that we are no longer using. The first 2 up for grabs are for patching either eye.  The lime green has sparkles and is made of felt (fit great when she was 2 and 3), the stripped on is made of a softer non scratchy fabric (it is a little too big and not girly enough for a 4 year old girl with oval glasses).  The next 2 are for  the left eye and are both made of felt (my daughter didn’t like them as much and said they are scratchy)  The pink one is for a smaller child (maybe 1 or 2) and the purple would be more for a 3 /4 girl.  All 4 are very similar in size, my pictures don’t really show you that well.   I also have multiple Ortopad sticky patches for girls (under 3 years old).   All these patches described are already in individual envelopes waiting for a name and an adress to be sent to.  Please only ask for 1!  (ajre nchin@yahoo.com (without the space)) I will update the post as the patches are spoken for.  Sorry only US residents and there is no guarantee that the postal system will safely deliver them to you =)

For all you parents who lovingly patch your little ones.  Make these, give them away, but just don’t sell them!  These are inexpensive, light weight, covering, re-usable, and have a smooth texture.  They can be personalized to fit your child’s personality and the shape of their glasses. The idea came to me late one night from trying all the patches on the market and they have worked well for Elly and hopefully may work for you.  It was designed for those of you in Miraflex in mind – hopefully it will work!  It can and should be adapted to best fit your child’s needs and glasses.  I can make each patch in less than 3 minutes and could make at least 50 of them for less than $5.00.  If you can tie a knot and push a needle back and forth, you can make these!

Materials

craft foam, needle, thread, scissors, knife, tape, and the pattern

The following tutorial will demonstrate how to make a right left eye patch.

1. First cut out your foam pieces, add any extra fun pieces that you may want.  Remember, the more you add, the heavier your patch will be.  Linked here (Patch Pattern) is a pdf pattern of the main patch pieces.

2.  Assemble the pieces and hold them together with your fingers to make sure you are making your patch go the right way.  Sew your embellishments on to the rectangular section first.

3. Then, using a simple knot and a straight stitch, attach the rectangular piece to the main patch on the bottom.

4.  Fold the V in until the edges are touching and stitch through all 3 layers; top, front, and over the glasses pieces. (see, your stitches don’t have to be pretty!)

5.  Then place a square piece of tape on the triangular side.  This is to make the opening where the temples go through just a little sturdier.

6.  Using a knife or other sharp object, make a hole large enough for the temples to fit through.

And you are done =)    Well, with the patch part… here is how they go on the glasses.  I told Elliana that it was my job to put them on and off for the safety of the glasses.  These patches will fit snugly and I put them on slowly.  I made 2 patches and they each lasted me over a month when put on by a parent.

First slide the temples in between the main patch and the rectangular piece.  If you have cables, making sure the ends get in the smaller hole is a little tricky.  Those with Miraflex, I think you can take the band off.  If not, e-mail me and I will think of something.

Then pull through until the patch sits comfortably on the glasses.  I trimmed with my scissors around the nose piece so the patch sits inside of the plastic and a bit from the top so it rests comfortably on their forehead (thats why it is easier to make the pattern bigger and cut to fit).  If you have the regular nosepiece, then you could make a vertical slit for the nosepiece to fit into

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Last and not least, have your child try their glasses with the patch on.  Make sure it is not rubbing or irritating, trim with a scizzors to make it a perfect patch for your child.

Almost forgot… we learned the hard way… DON”T use red or dark pink like my pictures.  When they sweat the color comes off and turns the skin pink.  I would use light pink, blue, white, yellow and other light colors.  If you do make a patch, please send me a picture to post.  I have a couple more that we have been using daily – pictures of them to come later!

I wanted to pass this along from Amblyopia Kids.  Belle is 5, and does a great job in this video of explaining why she wears a patch.  I love the idea of helping kids talk about why they have a patch (or glasses) in their own words, to help them feel more comfortable with it, and to answer the many questions that get asked.

Nicole just posted this question on the facebook group, and I thought I would post  it here in hopes that someone else may have experience or thoughts for her.

I am about to embark on full time eye patching of my 2 year old son, to see if we can gain some improvement of vision in his left eye, this needs to be done 24/7 for one full week. We then have to go for an appointment to the opthamologist and hopefully will see some improvement, as his vision is declining rapidly in his left eye. Not looking forward to this, prior patching for short durations has resulted in tantrums, pulling patches off, wrecking glasses and refusing to open his eye that isn’t patched. Has anyone been through a similar process and have any tips?

There are benefits to being awake nursing a baby at 3:00 in the morning, one of which that I have time to think by myself (well, without a chatty 3 year old)  This is the patch that I came up the other night / morning.  It is light weight, covers 98% of all light, easy to make and inexpensive.   All you need is the pattern, some craft foam, scotch tape, a needle and thread.  Would anyone be interested if I made you a tutorial?

It has been a while since we have had to atropine drop.  Last week, the ophthalmologist had us use the drops in both eyes for 3 days to get the most accurate measurement that they could.  These days were a reminder of why we ended up switching back to patching.

So, you may ask, how in the world do you get the eye drops in.  Well, we line up all the babies who are also getting their eyes dropped (for pretend)  Then we practice on them, telling them it will hurt a little and praising them for holding still.  When I get to the end of the line (Elly)  I hop on, hold her arms down with my knees, pry her eyes open with my left hand and drop with my right.  This is all done swiftly and in less than a second all the screaming, huffing, puffing, kicking, thrashing, you name it, is over.  I then tell her how brave she was and life moves on.

She really hated her glasses for about a week and a half until the atropine wore off, was a bearcat in her disposition, and expressed her distaste in the drops.  The good news is that the reading was the most accurate so far and resulted in a prescription changed.

Yeah eye drops and yeah no more eye drops.

Glasses – Check

Occlusion – Check

Surgery – Check

Prism Adaptation – Check

Hmmm… is there something related to little ones in glasses that we haven’t tried yet????   Not that I know of!  We went to the ophthalmologist on Friday due to Elliana’s eyes becoming more over corrected. (major bummer) It appears that she is reacting atypically.  As time progresses her eyes are turning in more rather than becoming straighter as traditionally happens.  She now has a Fresnel prism placed on her glasses.  My first question was, “What is that?”  I understand that it similar to the prisms used in the exams.  I asked how it is different than a lens.  It does not affect the distance at which the light focuses on the back of the eye, rather bounces light in a different way (sorry, still not sure on this.)  Googling Fresnel Prisms on glasses has me just  about as confused.  The article Management of Strabismus and Amblyopia: a Practical Guide byBy John A. Pratt-Johnson, Geraldine Tillson says that “Occasionally, a patient with an acquired esotropia and the full optical correction in place may have a much larger angle esotropia on the prism cover test than appears to be present at a casual glance…the prism estimated as needed to neutralize the deviation is inadequate and more and more prism is required.”  It sounds like this treatment is rare.  We pretty much put a stick on prism over her strong eye because it may act as an occluder.  We go back on Friday for more tests and the article says something about testing for fusion with a synoptophore or the Whorth four-dot test. None of which I know anything about.  Unfortunately, we also have to put atropine drops in both of her eyes for the next 3 days in order to get a good read on her vision this Friday.  Since she is older and more verbal about her eyes – she is NOT a happy camper and has expressed her distaste for the eye drops and has screamed all morning.  2 more mornings of drops.  Wish me luck and let me know if you know anything else about the prisms!

To Our Patching Families,

Sometimes it is hard to remember why we are patching.  After placing the patch over our child’s stronger eye vision or pealing a sticky patch away from their reddend skin, it is easy to say, “We’ll skip patching today.” The most important thing to remember though, is that if your child’s Opthamologist asks for 4 hours every day, we as parents, MUST make 4 hours every day happen.  

I am reading the book “Children with Visual Imparents, a Parents’ Guide,” and came across some words that must be shared.  This book is a fabulous resource and I am hoping to write a book review when I am finished.  The chapter I just read was on medical issues, treatment, and professionals written by Steven Stiles, O.D. and Robert Knox, M.D.   There is a section on Amblyopia and they write, “It is very important that you realize the number one factor in the success of eye patching is to keep the patch on the eye as prescribed by the doctor (p.29).”  Our chidren’s doctors may tell us what we need to do to give our kids a chance at improving their vision, but it is our responsibility to make sure that we follow through with this task, no matter how difficult.  The best time to treat it is NOW, when our kids are young.  Just think of this,

“Damage to the eye caused by failure to wear the patch will likely be permanent.”

Amomofelly

There have been some questions lately on how my 3 year old daughter, Elliana, is doing 2 months after her surgery. I have been meaning to post an update and just haven’t had the chance.

My daughter is just one of many kids who have Lateral Rectus Eye Muscle Surgery and each child reacts differently.  Please remember that I am not an expert, just a loving parent, so this is by no means medical advice or how other children may react.

Our Ophthalmologist said that she appears to be adjusting harder than most and is struggling a bit.  I also just had a new baby (he is 3 months old) so the last 3 months have really rocked my daughters’ world.  She is now down to waking up with nightmares only 1 or 2 times every night and is having less bathroom accidents (Se was potty trained for a whole year prior to surgery)  Thankfully, her light sensitivity seems to have disappeared.  We have also started giving her temple massages, which seem to help relax her.

My biggest worry for recovery is that we would have to go in again for surgery.  We were told that 10% of our PO’s patients need to go in for “touch ups,” as the surgery is based on measurements, but each child’s eyes reacts differently.  They overcorrected her eyes because statistically, eyes will drift outward again following surgery.  Because of this, her eyes were crossing in a lot in the beginning.  They still seem to me to be inward, but the PO said it is because I am not used to seeing her eyes straight.  When her glasses are off (right before bed) her eyes are all over the place.  I am told this is normal.

Right now, I am still a little worried, but it seems like her eyes just need a little more time to get used to their new position.  The prescription in her stronger eye has changed from -1 to -3. I am told this is also normal as her brain is recognizing the weaker eye and making adjustments.  Here are some pictures to help tell her story.  I promise she is usually smiling from ear to ear, but HATES to look at the camera. 

The first picture was taken in December before the surgery.  The second picture was taken the day after and the third picture is from today – 2 months after the surgery.  The only way I could get her to look at the camera was to let her eat the candy from the candy necklace she just made =)