Diving into Congenital Glaucoma – Head First
Wow. I finally have something “important” enough to blog about. Thanks Ann for the opportunity! I don’t think I can express just how much I truly appreciate it.
First, an introduction. My name is Stacie. I’m a married working mother of 3 beautiful children. Aaron is 14 and has Aspergers (high-functioning autism), Jamie (my girl) is 13 and was recently diagnosed with bi-polar disorder, and Conner, my 3 year old, was recently diagnosed with “late-onset” primary congenital glaucoma in his right eye. It’s Conner’s challenge in life that brings me to this blog.
If you are anything like me, you have googled and googled and googled until you can’t google no more, trying to find someone who is going through something at least half way similar to what you are. Raising a child with Congenital Glaucoma.
Guh. Just the sound of it. I’ve noticed that medical professionals say “Congenital Glaucoma” in the same tone of voice as they say “Cancer.” I know it’s not cancer. It’s not life-threatening, but it’s very scary all the same.
What is Congenital Glaucoma? How often does it happen? What causes it? Is it genetic? Can it be cured? How many surgeries will he/she have to go through? Will there always be eye drops? Will my baby go blind? All questions I asked myself the first time I sat down at my computer to find out all I could find about Congenital Glaucoma. It’s my hope I can share some of the things I’ve found, some of the experiences I’ve had, and some of the knowledge I’ve gained, plus help parents of kids with Congenital Glaucoma network and provide each other with support.
Anyway, I’m getting ahead of myself. I’d like to start off telling Conner’s story so far in little segments. I believe there are huge lessons in the little segments that may help some parents with early diagnosis, and early diagnosis is the key to less vision loss.
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