Comments on: Week 6 – FrameHuggers

By: on the question of straps « little four eyes

on the question of straps « little four eyes — Wed, 06 Jan 2010 03:23:49 +0000

[...] mentions of glasses straps the past couple of days. First, Camille from Framehuggers (one of the highly rated patches that Amomofelly reviewed) tweeted that she had finished developing a head strap for infants and [...]

By: ingrid

ingrid — Wed, 16 Sep 2009 11:44:46 +0000

yes, me too. The idea of a thinner fleece is a great idea too.

By: amomofelly

amomofelly — Sat, 12 Sep 2009 12:28:53 +0000

YEAH! WE are in love with them and hope you find success. It has been so hard to try other patches. Elly just takes them off and asks for the framehuggers. Camille does have a new option she is considering offering parents that is a little lighterweight and made out of a thinner fleece. I love that she tries to meet the kids needs and is totally dedicated to helping us!!!

By: Jen

Jen — Fri, 11 Sep 2009 23:45:39 +0000

Thanks for this review. I only found this website a few minutes ago. I have been researching non-adhesive alternatives today since my daughter has torn skin from her patch. I actually spoke with Camille at Framehugger today and decided to get them for my daughters. Now your review has cemented my decision!! Thanks again.

By: Corrie

Corrie — Wed, 12 Aug 2009 23:35:51 +0000

Yeah, Ingrid! I am so happy for you! I know your little Paris will continue to improve her eye sight and you will soon see the results of your hard work! We also love this patch. We have been using it for a couple of weeks at least and now we are going to full time patching, so we will continue to use this one as E. likes it best of all of them. All the best to you and Paris!

By: Ann Z

Ann Z — Wed, 12 Aug 2009 15:39:34 +0000

Awesome news, Ingrid!! I’m so happy to hear that.

By: amomofelly

amomofelly — Wed, 12 Aug 2009 14:03:48 +0000

YEAH! I am so glad the patch is working for her. I have some more reviews to post soon, but none have worked as well as framehuggers. Elly screems and says “I want the blue one!”

By: ingrid

ingrid — Wed, 12 Aug 2009 12:08:41 +0000

Hi guys,
I just wanted to share some good and very positive news re the patching. We ordered the frame hugger patch and Paris is keeping it on and doesn’t mind it at all!!!! I cannot believe my luck! The very first time she resisted it for maybe a minute but once it was on, and we distracted her she did not touch it again until I took it off two hours later. The next day it was even easier and today she took it completely in her stride! She is so proud of herself too, I think becase she knows it comes off after a while and we have a treat and praise her and she says eye better!!! She just carries on as if it’s not there really, watching TV, doing puzzles, playing outside. I cannot speak more highly of the frame hugger. It is so soft and such a good fit, there is no way she can peek. I truly feel as though this is really going to help Paris’s vision improve enormously. It has lifted my spirits so much and I feel so much more positive. Just wanted to share and thank you so much amomofelly, if it were not for your reviews of the patches, which I followed closely, I would never have got on to them! I have recommended them to so many other already.

By: Corrie

Corrie — Sat, 25 Jul 2009 20:01:04 +0000

We did try atropine drops with E. She was only about to turn 1, and it was awful! Her whole personality changed, she would scream and cry all day. I only did it for one week and begged our PO to let me stop. We went back to patching after that, and had no more problems. I can vouch for the framehuggers patch, though! The first thing E. said when we got it was “oooooooooh…. it is so soft.” We were at the beach all of last week and even there, she kept the glasses and the patch on the whole time. I know it is so hard, but you have to be persistent. If our children get away with not wearing the patch one day, they will certainly try if it works another day. Our patch goes on first thing in the morning and does not come of until nap time. E. will take her glasses of from time to time and ask to take the patch off of them, but I just remind her that she has to keep it on until it’s time for a nap. She has asked to go to bed before so she can take off the patch…. so you know it is really bad. Hang in there! Once you make it a part of the daily routine, Paris will adapt, and it will become a part of her daily life, just like putting on shoes to go outside! I promise! Kids are so adaptable, but it takes persistence on our part to make it happen.

By: ingrid

ingrid — Fri, 24 Jul 2009 23:23:26 +0000

Thanks amomof
Yes, each age would have its challenges definitely! It must be even more heartbreaking when they use those words to pull at the heart strings. I know you are right though, it is imperitive to patch if we are to get better vision in that eye. I am going to try the atropine drops for Paris at least until she is older. We have an appointment with the PO on wed to discuss. Can anyone offer any advice on this, have you had any experience with the drops? Are they safe? Will it be uncomfortable for her? Its our only option at this stage I think.
Many thanks,
Ingrid