Comments on: Your stories – Jesse (amblyopia and hyperopia)

By: Betsy

Betsy — Fri, 03 Sep 2010 17:25:14 +0000

Thank you for sharing your story! I found this blog after googling different eye terms like hyperopic, etc. I’m so comforted because this is exactly, I mean to the detail exactly what is happening with my daughter right now, who turned two in July. I went to the exam for the same reason (crossing left eye) and turns out she’s far sighted and needed glasses as well. I had the same fears but she’s done great this first week with them. I’m very proud of her. Thanks for sharing your story and letting this mama feel better

By: Ann Z

Ann Z — Thu, 24 Jun 2010 03:24:39 +0000

I didn’t know anyone whose child wore glasses either – let alone had strabismus, that’s a big part of why I ended up starting this blog. It’s so easy to feel alone in this, but there are a lot of us here.

By: Jennifer

Jennifer — Wed, 23 Jun 2010 22:22:08 +0000

oh how wonderful. It can be soo confusing. I dont’ know anyone else whose children have these. I will definitely add them. Thank you.

By: Ann Z

Ann Z — Wed, 23 Jun 2010 18:32:17 +0000

Welcome Jennifer! Quite a few of us have kids with amblyopia or strabismus or hyperopia - often all three (Zoe has strabismus and hyperopia, but no amblyopia so far). Please feel free to post any questions or thoughts and I know others will chime in as well. You might want to check out a couple of other facebook groups: Little Four Eyes has a group for parents of kids in glasses, no matter what the diagnosis. There's also the group Pediatric Esotropia/ Exotropia/ Strabismus/ Amblyopia/ Cross-eyed Awareness, and the group Parents of Children with Strabismus and Parents whose children need to wear eye patches for a medical reason. There's some other links on the Resources for Parents page that lists forums and communities if you're looking for other places to connect with other parents.

By: Jennifer

Jennifer — Wed, 23 Jun 2010 18:04:16 +0000

my four year old has ambliopia, strabismus and hyperopia. Would love to chat with you more. I just started a group on facebook…parents of the vision impared. No one on it yet. But hope to find parents to chat with and see how different things are working for them. I don’t know anyone else with my child’s condition.

By: The Enfant Vision Team

The Enfant Vision Team — Fri, 17 Apr 2009 17:54:39 +0000

Vision problems like amblyopia can develop in children anytime from birth and are not always obvious to parents. Until a child can fully respond verbally to the letters on a standard eye chart, it is often difficult, even for pediatricians, to determine if these silent vision issues are present.

Many pediatricians’ offices across the country are now offering a test called the Enfant Pediatric VEP Vision Testing System as part of their preventative healthcare arsenal.

The Enfant:
- Is a high-tech, clinically proven vision test now available in many pediatricians’ offices.

-Is a non-invasive, child-friendly medical device that tests for visual deficits in even pre-verbal children as young as six months of age.

-Uses technology called Visual Evoked Potential (VEP), which evaluates the child’s response to an external stimulus to test what the brain is seeing. Through VEP, the Enfant is able to identify vision deficits that a physician might not otherwise detect during more conventional, subjective eye exams.

- The first and only pediatric vision test of its kind, the Enfant delivers 97 percent sensitivity in detecting visual deficits.

- The test can be easily incorporated into a child’s routine pediatrician “well” visit and can be completed in five to seven minutes.

- Features animated characters and graphics accompanied by music.

- In most cases, the test is reimbursable by insurance.

For more information on the Enfant Pediatric VEP Vision Testing System or to find a doctor offering the test in your area, visit http://www.enfantvision.com.

By: Kathy

Kathy — Tue, 06 Jan 2009 22:06:01 +0000

Try Janet Goodrich also. She writes a book specifically for children.

By: Kathy

Kathy — Tue, 06 Jan 2009 22:05:26 +0000

I would suggest doing eye exercises with your child if they have an eye problem.

William Bates. He’s a great author.

By: amomofelly

amomofelly — Tue, 09 Dec 2008 02:03:26 +0000

I would love to learn about your experiences on the moms council of InfantSee. We had no idea this existed, but have struggled with vision since she was 6 m old and it would have been another resource for us. I just went on the website and found that there is even a provider in our city.

By: Ma

Ma — Mon, 08 Dec 2008 21:50:55 +0000

Amblyopia is pretty easy to treat when it’s caught early.
I didn’t see any mention of video games on your website. Some sports can also be very helpful. New research shows that some computer games can show good results in one hour. One parent treated her 6-year-old child with computer games and sports like homemade bowling. Her child went from 20/400 to 20/20 in 4 months. You can read about it here
http://www.kidslike.info/how_to_treat_your_childs_amblyopia
“The key might be to do a sport where your eye (while patching) has to track something, moving toward and away from you, that you are trying to hit with your hand. This can be homemade bowling. This can be hitting a large balloon back and forth. This can be ping-pong. A lot of the research has been focused on computer games, rather than something that moves closer and away from you in real, physical space. The distance covered should be fairly large, say more than six feet. This should be more helpful than doing Legos, which my pediatric eye doctor recommended.”